This year has been rough! I haven’t posted much because I’ve been to sick. I was in the hospital & had a bowel resection from 03/29-05/30 Came home & recovered quite well. In fact I was feeling the best I had in years, but August came & things turned quickly. I started throwing up &… Read more
Advocacy
Rare Disease Day 2020
Rare Disease Day is celebrated on February 29th. A “rare” date that only occurs once every four years. The main objective of this day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Due to rare disease, patients and families share a common struggle; difficulty… Read more
