life + style
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@kristylpoindexter
New wide leg track pants that are just my style!
I also love the light blue color (comes in white & navy as well) 🩵
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/5bLPC #ltkover40 #ltkactive #ltkseasonal #cuteandcomfy #invisibleillnessawareness #tpndependent #sbs #achelasia #livinglifetothefullest
New wide leg track pants that are just my style!
I also love the light blue color (comes in white & navy as well) 🩵
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/5bLPC #ltkover40 #ltkactive #ltkseasonal #cuteandcomfy #invisibleillnessawareness #tpndependent #sbs #achelasia #livinglifetothefullest
Laying in my bed at Stanford & felt it shaking. I knew right away we were having an earthquake! Did anyone else feel it tonight?
Laying in my bed at Stanford & felt it shaking. I knew right away we were having an earthquake! Did anyone else feel it tonight?
Yes I’m OBSESSED over these new pieces I got in the mail today from @stelladot!!!
Comment SHOP for a link to my storefront + coupon code!
And believe me you’re going to flip when you see the new arrivals coming for Spring 25’!!!
#sdstyle #stelladotcreator #sdjoy #springaccessories
Yes I’m OBSESSED over these new pieces I got in the mail today from @stelladot!!!
Comment SHOP for a link to my storefront + coupon code!
And believe me you’re going to flip when you see the new arrivals coming for Spring 25’!!!
#sdstyle #stelladotcreator #sdjoy #springaccessories
Today is Rare Disease Day!!! 🦓
Rare Disease Day is technically February 29th because it’s a leap year the most rare day of the year. But celebrated on 2/28 on the non leap year years!
Rare Disease affects more than 300,000,000 people worldwide.
I happen to be one of those 300 million! ☺️
If you know me then you know that I got really sick when i was just 8 yrs old. I presented like I had a typical virus, every time I’d eat I would throw up. That labeled me as having an eating disorder & it started my chronic illness journey!
I wont go into a lot of details as that would become a novel & right now I dont haveve the energy or brain power to think. Nor do I want to stir up my medical PTSD.
So what diseases do I have that make me part of the RARE disease population?
* Achelasia (a disease of the Esophagus)
* CIPO (Chronic Intestinal Psuedo Obstruction)
* SBS (Short Bowel Syndrome)
* Bronchiectasis (Lung Disease)
* Intestinal Failure
In short I cant eat & have been dependent on IV nutrition for most of my life. I was one of the first children sent home on TPN (Total Parenteral Nutrition) from Stanford in 1988. I had 2 major surgeries on my Esophagus to try & fix the Achelasia. Unfortunately, neither surgery worked. My Vagus nerve was cut which lead to motility issues throuout my GI tract. Due to the motility issues causing bowel obstructions (CIPO) I’ve needed many bowel resections. Those rescetions of my small bowel left me with SBS & Intestinal Failure!
Over the years I have learned to advocate for what I need to be able to live a somewhat normal life. Dealing with the healthcare system is not easy, but thankfully I’ve had my parents by my side this entire time.
Despite all the bad things that have happened I consider myself blessed 😇 Ive taken on a role as a patient advocate which I absolutely love doing. I started a FB TPN-Total Parenteral Nutrition Support Group in 2011 with the intention of connecting, providing support & education to other TPN consumers/caregiversers who are on similar paths.
So today I share with your a glimpse of my story & what its like living with multiple rare diseases!
#rarediseaseday #rarediseaseawareness
Today is Rare Disease Day!!! 🦓
Rare Disease Day is technically February 29th because it’s a leap year the most rare day of the year. But celebrated on 2/28 on the non leap year years!
Rare Disease affects more than 300,000,000 people worldwide.
I happen to be one of those 300 million! ☺️
If you know me then you know that I got really sick when i was just 8 yrs old. I presented like I had a typical virus, every time I’d eat I would throw up. That labeled me as having an eating disorder & it started my chronic illness journey!
I wont go into a lot of details as that would become a novel & right now I dont haveve the energy or brain power to think. Nor do I want to stir up my medical PTSD.
So what diseases do I have that make me part of the RARE disease population?
* Achelasia (a disease of the Esophagus)
* CIPO (Chronic Intestinal Psuedo Obstruction)
* SBS (Short Bowel Syndrome)
* Bronchiectasis (Lung Disease)
* Intestinal Failure
In short I cant eat & have been dependent on IV nutrition for most of my life. I was one of the first children sent home on TPN (Total Parenteral Nutrition) from Stanford in 1988. I had 2 major surgeries on my Esophagus to try & fix the Achelasia. Unfortunately, neither surgery worked. My Vagus nerve was cut which lead to motility issues throuout my GI tract. Due to the motility issues causing bowel obstructions (CIPO) I’ve needed many bowel resections. Those rescetions of my small bowel left me with SBS & Intestinal Failure!
Over the years I have learned to advocate for what I need to be able to live a somewhat normal life. Dealing with the healthcare system is not easy, but thankfully I’ve had my parents by my side this entire time.
Despite all the bad things that have happened I consider myself blessed 😇 Ive taken on a role as a patient advocate which I absolutely love doing. I started a FB TPN-Total Parenteral Nutrition Support Group in 2011 with the intention of connecting, providing support & education to other TPN consumers/caregiversers who are on similar paths.
So today I share with your a glimpse of my story & what its like living with multiple rare diseases!
#rarediseaseday #rarediseaseawareness
I’m excited to announce that I’ve completed my Health Union LLC Patient Leader
Certification at the Social Health Network. The program covers the best
practices in powerful storytelling, meaningful engagement, and responsible patient
leadership.
I’m looking forward to taking the next steps in my Patient Leader journey
and making a real impact in the lives of others!
#PatientLeaderCertification #patientleader #patientadvocate #chronicillness #invisibleillness #tpndependent #tpn #sbs #ShortBowelSyndrome
I’m excited to announce that I’ve completed my Health Union LLC Patient Leader
Certification at the Social Health Network. The program covers the best
practices in powerful storytelling, meaningful engagement, and responsible patient
leadership.
I’m looking forward to taking the next steps in my Patient Leader journey
and making a real impact in the lives of others!
#PatientLeaderCertification #patientleader #patientadvocate #chronicillness #invisibleillness #tpndependent #tpn #sbs #ShortBowelSyndrome
Valentine ♥️ Unboxing!
The Skims Valentines Store is full of cute loungewear, pajamas & lingerie! Time to treat yourself 😍 I’ve linked a bunch of options on my LTK
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/55u5a #ltkfindsunder100 #ltkover40 #ltkseasonal
Valentine ♥️ Unboxing!
The Skims Valentines Store is full of cute loungewear, pajamas & lingerie! Time to treat yourself 😍 I’ve linked a bunch of options on my LTK
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/55u5a #ltkfindsunder100 #ltkover40 #ltkseasonal
Arts & Crafts storage container’s!
These plastic containers are perfect for different art supplies from paper to glitter and everything in between 😉
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/550s3 #ltkhome #ltkfamily #ltkseasonal #craftstorage #artstorage #artsandcraftstorage
Arts & Crafts storage container’s!
These plastic containers are perfect for different art supplies from paper to glitter and everything in between 😉
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/550s3 #ltkhome #ltkfamily #ltkseasonal #craftstorage #artstorage #artsandcraftstorage
Valentines Day Casual Style Edition
Some pops of red or pink & cute heart accessories are a fun way to dress for the season of ♥️
I’ve added my FAVORITE @stelladot Stevie Heart Necklace (comes in gold & silver), Julia Hoops & a fun arm stack! LMK if you’d like a direct link to my S&D storefront. You can also find it in my bio!
Hat is from a local Bay Area boutique @primmbtq
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/549ku #ltkfindsunder50 #ltkactive #ltkover40 #stelladotstyle #sdjoy #styledbykristy #sdcreator #stelladotcreator #stelladotambassador #valentinestyle #valentinegifts #galentinesgift
Valentines Day Casual Style Edition
Some pops of red or pink & cute heart accessories are a fun way to dress for the season of ♥️
I’ve added my FAVORITE @stelladot Stevie Heart Necklace (comes in gold & silver), Julia Hoops & a fun arm stack! LMK if you’d like a direct link to my S&D storefront. You can also find it in my bio!
Hat is from a local Bay Area boutique @primmbtq
Comment SHOP below to receive a DM with the link to shop this post on my LTK ⬇ https://liketk.it/549ku #ltkfindsunder50 #ltkactive #ltkover40 #stelladotstyle #sdjoy #styledbykristy #sdcreator #stelladotcreator #stelladotambassador #valentinestyle #valentinegifts #galentinesgift