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✨ Don’t Miss Out — Labor Day Treat Ends Soon! ✨

Labor Day is HERE and we’re celebrating YOU with something extra special. 💕

🗓 Now through September 2nd only
💝 Spend $150+ USD & unlock a FREE gift (up to $79 value)
✨ You get to choose your gift!

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🎉 Treat yourself + stock up before the long weekend is over!

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** Free shipping** on orders over $100 also applies ...

✨ Update time!

This afternoon my old single lumen Hickman/Broviac—after 22 years!—was retired and replaced with a brand new double lumen central line. 💙

Going in, there was some uncertainty about whether they’d be able to get the old one out or place the new one, but thankfully everything went beautifully. 🙌 They got the new line in right away, and for the old one they had to carefully dilate around the vein, but it came out safely.

My IR doctor reminded me he doesn’t want me keeping lines in longer than 10 years (though he admitted he was part of the decision to let this one stay so long 😅).

Tonight, I’m feeling a mix of relief and gratitude—22 years is a long run, and this line was truly a part of me. Here’s hoping this new one serves me just as well in the years to come. ✨

#NewChapter #GratefulHeart #ChronicButCourageous #StrongerEveryDay #HealingJourney #LifeWithLines #BittersweetGoodbye #TPNLife #CentralLineChronicles #NewChapter #GratefulHeart #ChronicButCourageous #StrongerEveryDay #HealingJourney #LifeWithLines #BittersweetGoodbye #TPNLife #CentralLineChronicles ...

✨ Big news! ✨

After 35 years on home parenteral nutrition and over a decade of advocacy work, I’m honored to be nominated for two Social Health Awards by @wegohealth/@socialhealthnetwork:

🏆 Lifetime Achievement Award
🤝 Community Cultivator Award

These nominations reflect the heart of my journey—turning lived experience into leadership, and creating a community where no one on TPN has to feel alone.

💛 Judging begins soon, and winners will be announced August 19th.
I’m beyond grateful for the opportunity to share my story on this platform—and to represent the incredible, resilient HPN community that inspires me every day.

#SocialHealthAwards #PatientAdvocate #TPNlife #HPNcommunity #OleyFoundation #ChronicIllnessAdvocate #TubieLife #PatientVoice #LivedExperience #SupportNotStigma #homeparenteralnutrition ...

PTSD Awareness Day 💚

Millions live with PTSD—including me.
I’ve had Medical PTSD for decades, but I stayed quiet about it… until COVID. When I had to face traumatic hospitalizations alone—no parents, no support—I couldn’t keep it buried anymore.

That’s when the chronic illness community started opening up, and for the first time, it felt okay to talk about it.

Medical PTSD is real. It lives in the body—in every beeping alarm, every rushed IV, every time I’m admitted and my nervous system goes into high alert. It doesn’t just go away, and honestly, the last few years have been some of the hardest for me emotionally when I’m inpatient.

I don’t talk about it all the time, but I am talking about it today—because silence doesn’t help anyone heal.

To those who get it: I see you. You’re not weak. You’re surviving. 💚

#PTSDAwarenessDay #MedicalPTSD #ChronicIllnessWarrior #PTSDRecovery #HospitalTrauma #YouAreNotAlone #PatientAdvocate #BehindTheSmile #ChronicIllnessLife ...